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About the author:
My name is Penny Brunner. My husband, Jerry and I currently live in Central Pennsylvania.
We are BLESSED to be the grandparents of Miles Daniel Brunner. Miles was born on October 31, 2012. Shortly after birth Miles was admitted to Penn State Milton S. Hershey Children's Hospital, Hershey, Pennsylvania. Miles was diagnosed with a very rare and currently incurable Pediatric Genetic Disease named Nonketotic Hyperglycinemia NKH. Currently there are approximately 600 living cases of NKH world-wide.
August of 2013, myself and our son
(Miles' Father) Matthew Brunner established, Smiles for Miles Non-Profit Organization.
It is our goals to bring AWARENESS of Nonketotic Hyperglycinemia NKH and other such Orphan Pediatric Genetic Diseases, Raise AWARENESS of Cortical Visual Blindness. Raising funds to HELP families currently battling such diseases, as well as assist in raising funding to enable continued RESEARCH.
It is our hope through continued RESEARCH, that we will someday see a CURES and in the meantime, see treatments continue to improve to enable these dear children to have the best quality of life possible.
We are dedicated to doing all that we can to HELP...
Please JOIN us www.smilesformiles.info
Trust in the Lord with all thine heart;
And lean not unto thine own understanding.
Smiles for Miles Everyday is an Adventure - A Fun Day on the River
A Fun Day on the River
A Fun Day on the River is a collection of photos and experiences that Mile's father, grandfather and uncle have had with their friends down the Pennsylvania Grand Canyon during the annual Smiles for Miles Charitable Foundation Kayaking and Camping trips.
This is a fictitious story of our character Miles and his dog Oscar.
Miles and Oscar get to have the wonderful experience of coming along for a day of kayaking. Mile's father makes sure that he has a specially made life jacket for children with disabilities...
Miles and his buddy Oscar and all their friends have a wonderful day.
A FUN filled book for the whole family to enjoy.
- Publication Date:
- 1507799853 / 9781507799857
- Page Count:
- Binding Type:
- US Trade Paper
- Trim Size:
- 8.5" x 11"
- Full Color with Bleed
- Related Categories:
- Fiction / Family Life